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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)
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@monce1189

Hi my name is andrea i am in the process of finding a diagnosis, i have high kappa light chain (urine) and so rheumatologist referred me to hematologist, kappa light chain disease is what I was told I have so far until apt with hematologist. Kappa light chain is 48.9 lambda 3.41 ratio is 14.34 just want to see what other people think, and what road I may be heading in
I am a momma of 3+1 bonus =4 girls
29yrs old
Father had cancer 3× non hodgkins, multiple myeloma, and plasymotoma
And information helps thank you tons!

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Replies to "Hi my name is andrea i am in the process of finding a diagnosis, i have..."
John, Volunteer Mentor | @johnbishop | Oct 3, 2019

Hi Andrea @monce1189, Welcome to Connect. I'm glad you found Connect and I'm hoping some other members will be able to provide some information for you. I had not heard of kappa light chain disease but did find some information on the Genetic and Rare Diseases Information Center that may give you more information about it.

Light chain deposition disease -- https://rarediseases.info.nih.gov/diseases/6906/light-chain-deposition-disease

I'm tagging our moderator @lisalucier to see if we should move your post to the following discussion where other members have posted about kappa light chain test numbers.

> Groups > Blood Cancers & Disorders > Current diagnosis is Amyloidosis and multiple myeloma
-- https://connect.mayoclinic.org/discussion/what-a-shocker/

How soon is your upcoming appointment with the hematologist? I hope you are able to come back and let us know what you find out.

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