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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)Comment receiving replies
Hi Ashley
I'm also very sorry you have developed peripheral neuropathy, especially at such a young age.
I have almost the exact same symptoms as you do. I've been playing around with various treatments, none of which have worked very well. I'm still experimenting, and will certainly post here if something good comes up.
Have you been seen at a tertiary care center like Mayo or a university? If not, they may have some answers, especially since you're so young.
What has worked for me a little is to wear sheepskin lined shoes like Ugg. It seems to delay the onset of burning, and make it a little less severe.
Also. when I can, I wear flip flops (with sheepskin soles that I insert myself).
Keep trying different things.
Don't be angry at the doctors (I'm one myself). This is a perplexing disease that they freely admit they don't usually have the answers for. Anger does no good, and will likely make you worse. At your age, I bet they'll come up with something eventually.
Replies to "Hi Ashley I'm also very sorry you have developed peripheral neuropathy, especially at such a young..."
Ashley,
As warm as it was outside the other day here in NY, I had no choice for my paining feet but to wear my daughters Ugg boots!
They were the hotness when she so desperately wanted 2 pairs a few years back (age 14).
They are old and beat down but... ya gotta do what ya gotta do. So, I strolled into the hospital wearing Ugg boots for my lidocaine infusion and my nurse said, "Wow, it got that cold out already?!"
Hi Jeff,
I have been to UCLA which is a big hospital in Los Angeles where they have specialists. So far no reason to know what is causing my neuropathy. So I've tried different remedies and whatever seems to naturally help the pain.
You are right about not to be angry. It doesn't make it any better so I do feel like I'm able to find ways to cope and stay calm and hopeful about this condition.
Thank you for your tips!
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@jeffrapp - Thank you for this great post. @ashley302 and other members, I recently was made aware of a website that I think can be helpful for a lot of patients and doctors - https://patientrevolution.org/ which was founded by Dr. Victor Montori. I watched his interview and was really impressed. I wished all doctors had the same philosophy.