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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@rwinney

Ah yes, I'm sorry, you said you were idiopathic. And you mentioned 2 years...is that how long ago you were diagnosed?

I have had b12 deficiency and unfortunately do not believe it was found early enough for nerve regeneration. I feel Drs sometimes want to keep a window of hope open.

Truth is there is no sure bet with SFN.

Keeping hope alive for slowing progression and comfort each day.

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Replies to "Ah yes, I'm sorry, you said you were idiopathic. And you mentioned 2 years...is that how..."
ashley302 | @ashley302 | Oct 2, 2019

I kinda new I had it before all the testing was done but pushed for the biopsy just recently to get the official diagnosis which was a few months ago. Yeah it's amazing how Doctor's know so little about the disease and no cure for it. I'm staying hopeful though.

Do you take one medication for yours and has your pain stayed the same level this whole time?

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