Hi everyone. OP here. I have an update - I met with my GP/PCP yesterday and mercifully, he listened to me. We had a good visit. I shared my concerns regarding the endocrinologist and his rudeness and my GP was compassionate. He does feel that the Reclast is behind my issues, and agreed that it could also have woken up a dormant autoimmune illness. So far, I've tested negative for Sjogren's. But something is going on and needs to be addressed. I'll be having a chest x-ray tomorrow and bloodwork for a full Lyme panel and a retest of the CRP. I will also be having an echocardiogram (if my insurance says I can).
What made me want to scream was getting a call from said endo and having him tell me FOR THE FIRST TIME that Reclast can affect "a certain number of people" negatively with long term side effects AND that it can bring to light existing autoimmune illnesses in dormancy. That was information that was never shared with me when discussing the protocol I've been on. Oh, and he also said I didn't *need* to take prednisone. I could just take advil. (facepalm) Except that taking advil in high doses can mess with your kidneys. Just... UGH.
I don't want my bones to turn to dust, y'all, but this is just a lot.

For those curious - when I was diagnosed at 18, it was such an incredibly rare presentation of the illness (POF) that I was one in like 4 million to have it present that way. Asking questions wasn't helpful because no one had answers. And because they didn't study female bodies properly until years after my diagnosis, no one has had any real answers ever. I was blindsided by the osteoporosis diagnosis, furious that I was given misinformation about HRT and stopped it too soon, and feel like no one in the medical realm cares. It's been 40 years of not knowing what to expect, not knowing whether whatever is going on is related to the POF, and when my next autoimmune illness will show up. I know that the medical world is still on the fence about calling thing like fibromyalgia and interstitial cystitis autoimmune, but I am certain that they and the others I've been diagnosed with are part of my suite of issues.

Thank you all so much for listening and caring.