@kjc48 Our neurologist said that there is no "maintenance" as such after 18 months in the protocol for Lequembe. However, one(with one's neurologist) might elect to reduce the infusions. Also, there seems to be some minor differences between Lequembe and Kisunla in that Kisunla protocol would stop the infusion once the brain is clear of the amyloid. So, part of the protocol is to check with PET scan (in which case insurance will pay for). Because Lequembe does not have that as part of their protocol. PET scans will probably not be covered by insurance (it is about $5000). He said that he would recommend getting a scan only if the patient is considering stopping. The patient would have to pay for it. That's my understanding now. You would want to verify that with your own doctor...

@kjc48 The protocol for Lequembi is 18 months or 36 treatments. My spouse had a PetAmyloid scan at the one year mark, after 24 infusions. His plaques were reduced per the scan so he is now doing once a month infusions. They mentioned it is now considered a maintenance program. Our insurance covers most of the T3 MRIs and most of the Petscan. I would love to know if anyone else is doing the maintenance program and if the disease is significantly progressing doing less frequent infusions. Once a month is definitely easier for us now as we were getting weary from the 2 hour drive each way to the infusion lab. I get such great information from people here! Thanks everyone!