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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 10 hours ago | Replies (6019)Comment receiving replies
I’ve been living with neuropathy for decades and it’s been getting worse. It can feel maddening and is wearing on me a lot lately. I can’t even keep track of or try to count the many places it hits me in a second or several seconds then it hits me in some other completely different area, almost nonstop all day every day. Occasional bouts where it’s far worse but those are a different thing where it’s an all-over feeling of pressure that’s pain, usually lasting 2-4 days. I never got a clear answer as to why and studies of the spine don’t show why. Sugar has been borderline for years but not diabetic. Glad to find a discussion group.
Replies to "I’ve been living with neuropathy for decades and it’s been getting worse. It can feel maddening..."
Good evening @lisie, I want to welcome you to Connect. The Neuropathy group is quite good sized and active. I thought it was heavenly to find folks who talked about symptoms and solutions in a friendly, informative forum. So, that being said, I have not quite wrapped my brain around your description of what you call neuropathy bouts. Do you mean that your neuropathy hits you with pain in different places on your body and for different periods of time? Is the type of pain always the same? Please help me understand. Thank you and have a peaceful sleep. Chris
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Hi @lisie, Welcome to Connect. I've have idiopathic small fiber peripheral neuropathy for 20+ years but I only have numbness and no real pain in both feet and slightly above the anklles. I shared my story earlier in a post here: https://connect.mayoclinic.org/discussion/anyone-here-dealing-with-peripheral-neuropathy/?pg=42#comment-65985
It can wear you down if let it get to you. The one thing that helps me when I'm having a bad day is to try and focus on something else as hard as that might sound. Sometimes it's just looking around or outside through the window at the bird feeder and enjoying whatever is there. It sounds like your neuropathy is also idiopathic. Are you able to share a little more about your neuropathy diagnosis and what medications you are taking if any?