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Alzheimer’s& Creutzfeldt-Jakob caregiving help appreciated!
Caregivers: Dementia | Last Active: May 28 7:50pm | Replies (9)Comment receiving replies
@bayviewgal Good morning. I apologize, I don’t know your name but my name is Terry (female) . My parents were quite progressive 76 years ago lol. My beloved husband is at the stage of our journey that you were speaking about and I’m new to getting support. I just thought I could always manage on my own (retired nurse thinking ) and realize now by reading your reply to Cliff that Inwas so wrong. Your suggestions were so helpful. And to read someone else’s description of what we are going through was so helpful. My husband Rick was always very “hands on” and I think the lighted fidget might help him. Could you explain where you got it. I’m in Canada. Will try Amazon for now . Thank you so much for your discussion. I realize now that we caregivers are all part of a big loving extended family. I also love the way you ended your comment. Peace, Strength, Love and Hugs to you also and to anyone else struggling today
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@terrylee26 Hi Terry, I'm Kathy. I'm glad that my comments to Cliff were helpful to you. The biggest struggle for both of us was his inability to communicate effectively but we somehow managed 🙂 I found a plaque that I hung pretty much from the beginning of this journey, that I would like to pass along: Pray More...Worry Less. Easier said than done, right? Believe me, I know. But I realized that there was nothing anyone or anything that could stop or slow down this disease, it was going to do what it was going to do so I just had to make it as comfortable for my Tom as I could. Like I mentioned earlier, Tom lost interest in a lot of things, so that was really tough, but ohhhh those fidgets seemed to do the trick 🙂 I found them on Amazon, pretty inexpensive I might add 🙂 I think I looked for dementia friendly toys/book/ etc. I wish you luck in your search.
Strength, Peace, Love and Hugs