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Severe myoclonus when lying down. Epilepsy? Diagnosis?

Epilepsy & Seizures | Last Active: 21 hours ago | Replies (12)
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Profile picture for memoriestomoments @memoriestomoments

@santosha Thank you, Chris. Your suggestion made me look, and it turns out that our neurologist is an epileptologist who did advanced epilepsy training at Stanford post residency. We have gone into hospice for my husband, but treating the myoclonus will be a central part of this, since it is essential to the primary goal of keeping him comfortable.

Best,

Taia

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Replies to "@santosha Thank you, Chris. Your suggestion made me look, and it turns out that our neurologist..."
Chris Gautier, Volunteer Mentor | @santosha | 21 hours ago

@memoriestomoments
My pleasure Taia!
I'm happy to know that your husband's neurologist is also an epileptologist — you are in good hands for this part of the journey.
Keeping him comfortable is the most loving gift you can give right now!
Sending you much warmth and strength. I'm here if you ever need to talk.
Chris

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