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Arachnoiditis: Looking to talk with others

Spine Health | Last Active: 4 hours ago | Replies (484)

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@mmata573085 your comment os so lovely it warmed my heart thank you God bless you, I'm still trying to learn and come to terms with the endless suffering and how to do it with grace and positivity I'm 34 been suffering for the last 10 years with nerve/back issues no one could figure it out. Is bitter sweet to get a diagnosis finally to find out its not fixable and could possibly progress even worst is a hard pill to swallow.

Guess I have to say goodbye to the old me who could climb mountains and had energy for days, my body is broken but my soul is still beaming with light.

It's 2am on the pain train once again oxycodone,morphine diazepam,pregablin and my final friend ketamine keeping me company, I just want to say I love you all this is a hard road but we must walk it in faith this test we have received I have to believe this is just the human experience and after this on to the next life 🙏 ❤️

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Replies to "@mmata573085 your comment os so lovely it warmed my heart thank you God bless you, I'm..."

@marcototti Amen, an Absolute Truth... Something you may want to investigate? I have just found it recently. Having been brought to the unfortunate conclusion. That I may have Epidural Fibrosis or potentially arachnoiditis. but it appears most surgeons. Don't care to discuss or dismiss this topic in my experience because Surgery is contri-indicated with EF... And a procedure that came about in the late 90s that actually addresses the problem. Has been ran under ground or out of town. By the huge medical device entities. Epidural lysis of adhesions. Is only available in a few states. And I'm not even sure if they actually provide it or just list it as a hook for potential new patients. So I found this protocol and was fortunate enough to find a Dr. who was willing to give me the opportunity just 2 days ago. So anyways something you might consider... https://www.researchgate.net/publication/8233322_Resolution_of_symptomatic_epidural_fibrosis_following_treatment_with_combined_pentoxifylline-tocopherol