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End stage liver disease

Liver Diseases | Last Active: May 21 8:32pm | Replies (12)

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@contentandwell my son is 40 years old. Was rushed to hospital in march of this year. His hemoglobin was 3. After numerous transfusions he was put in ICU. Hospital said he was bleeding internally. He was diagnosed with cirrhosis a year ago and was being treated at Mt Sinai in NY. He had TIPS surgery about 9 months ago and it was helpful because it had his ascites under control. He relapsed with alcohol right before his present hospitalization. The last 3 months have been horrible! He went from emergency room to ICU to step down. He is presently in a Specialty hospital with the hope of getting strong enough to receive transplant. He requires a paracentisis every few days (the TIPS is no longer working) and his hemoglobin sometimes goes below 7, requiring a transfusion. His legs, abdomen and groin are very swollen. Any advice or information would be greatly appreciated. Thank you

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Replies to "@contentandwell my son is 40 years old. Was rushed to hospital in march of this year...."

@rip84
Hi, I am a mother of adult sons near the age of your son, and I want to let you know that I can understand how worried and helpless you must be feeling with this current setback that your son is experiencing. I am also a liver transplant recipient who had my own difficult end stage liver disease complications that were mostly different than your son is experiencing. However the swelling abdomen and ascites and leg swelling were something I had. This is not easy for either you or your son, but I hope that the hospital where he is currently being cared for will be able to answer some of the questions about advice or information.
Is the hospital where your son is nearby where you live? Are you able to visit him and/or speak with the doctor or his care nurse?