← Return to Considering Tulsa Pro or Proton radiation (full gland)

Discussion
Comment receiving replies
Profile picture for jaygk @jaygk

@stldadof4 that sounds very similar to my experiences at Kettering for Tulsa.

I wasn’t sure if it was my whole gland or my less than 5% Gleason 5 that made me unfavorable. I think they would do the treatment if I insisted …. but they felt I would be back in 2 to 3 years to be retreated.
I received my decipher test back and got a 0.19 which I am excited about.
I’m sending my Gleeson five off to Dr. Epstein for a second opinion.
If my 5 is downgraded to 4 I will probably skip the hormone therapy based on that fact, and my favorable Decipher score
I just sent my Prostox off to see if I’m sensitive to radiation.
If I’m not sensitive, I’m looking at 28 IMRT treatments at the university of Cincinnati
28 is a lot but the radiologist oncologist mentioned that the SBRT can be somewhat of a roller coaster and I am only 20 miles away from the site
I’ve never been through anything in my life that was so difficult to decide.
So many options and so many side effects.
I hope I can be confident in my decision and not second-guess myself after treatment begins
I have requested the spacer and the gold markers

Jump to this post


Replies to "@stldadof4 that sounds very similar to my experiences at Kettering for Tulsa. I wasn’t sure if..."

@jaygk

I wish you the very best.

@jaygk We do have a lot in common on this journey. I had a low ArteraAI score (similar to decipher) just sent off my prostox too. I had not heard that about SBRT. Like you, I’m pretty close to the treatment center so I don’t feel like I need to conserve trips. I totally agree with you that there seem to be so many options all with their own life-altering pros and cons. It is very overwhelming. The cynic in me wonders if it’s just a big money grab. I’m sure there is an element of that since there is such a large industry built around any type of cancer, and PC is the only one I have firsthand experience with. I also hope that you and I (and all of us who are on this road) can pick the option that seems right and then move forward with confidence. From reading about others, it seems like that is typically the case and guys are happy with the path that they chose. Just takes a lot to get there. All the best to you on this journey