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Low PSA, Positve MRI, Negative Biopsy, today High ExoDx, next steps?
Prostate Cancer | Last Active: May 23 8:44am | Replies (10)Comment receiving replies
Thank you again Jeff for your response. Obviously, I am somewhat annoyed by the medical care in my area, central SC. There was no underlying cause or reason to even visit a urologist initially, except I had just turned 60 at the time, 3 years ago. Since then it's been one small hill after the other. After requesting an MRI and being told I had the 3 tumors, I was very shocked, especially considering the potential probability and severity of a pyrad 4 tumor.
Unfortunately, a Transperineal biopsy is not available in this area, the Transrectal was rather barbaric. However, as stated previously, the results were benign. Then yesterday after a ExoDx test 2 months ago, I get the latest news.
I feel like time is passing by, 2-1/2 years now, and there is still the possibility of a significant cancer risk.
So at this point, I am researching where to go for more specific expertise and competence.
Sorry for such a long run on note, I do sincerely appreciate your advice and suggestion for the EpiSwitch test.
LakeOne
Replies to "@jeffmarc Thank you again Jeff for your response. Obviously, I am somewhat annoyed by the medical..."
City of Hope in Newnan Georgia has been incredible in my situation.
I do not know how far you are from Atlanta. Newnan is on the south side of Atlanta.
Definitely find a place who can help you determine your current conditions.
I made my 1st phone call to City of Hope last October after having an MRI and biopsy at local hospital. Within 2 weeks, I was able to meet with Surgeon/Urologist and Radiation Oncologist.
They will work with you to minimize travel and perform tests and visits on the same day (whenever possible). All MRI’s, PSMA pet scans, bloodwork, pathology, etc are completed in-house.
In April of this year, I had a repeat Biopsy at City of Hope. 3 days after biopsy, Surgeon called me to talk about results. I have not had to wait more than 4 weeks for any visit or test.
Many drive 6-8 hours, or more to go there. They will help arrange hotel and travel arrangements if needed.
There are other Centers like this. You definitely need to find one. If you are interested in going to City of Hope in Newnan, Georgia, let me know. I will provide names for great Urologist and Radiation Oncologist.
I met yesterday with Urologist to discuss Surgery. He spent more than 30 minutes with me and answered questions and was very willing to send biopsy slides to Dr Epstein and send off for Genetic Testing.
A friend from Church went to City of Hope last week fir the 1st time. He has had advanced prostate cancer forthe past 6 years. Radiation, ADT, and chemo. His Oncologist was retiring and he did not know where to go. I told him I did not what City of Hope would recommend, but he should let them evaluate his condition and treatment. After he went, he said he had never felt such peace after being at a facility for 5 hours. They really try to make the cancer treatment process be as good as possible.
Make phone calls and find a good center.
At City of Hope, it just takes 1 phone call to get started.
Best Wishes.
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@lakeone
Others have mentioned, Though here is a really great oncologist to talk with
Duke North Carolina
Dr Daniel James George GU Oncologist
Dr. Andrew Armstrong genetic issues
NCCN has no recommended locations in South Carolina
NCI recommends this place in your state as a center of excellence
Hollings Cancer
Center
Medical University of
South Carolina
Charleston, South
Carolina
Clinical Cancer Center