It wasn't until I was diagnosed with Small Fiber Poly Neuropathy that I learned of the disease. Never heard of it prior nor did anyone I know. Setting myself aside, I also learned that cancer survivors are often left with this not so pleasant souvenir. Of course surving cancer is a feat in and of itself but I was dumb founded to learn that patients who have triumphed can be left in such misery. Call me naive but, it really pisses me off! Especially when I sit in the Apheresis unit for my lidocaine inusions and observe the sweet, innocent children fighting for their lives. The thought that IF they conquer cancer they may be left with debiliating nerve damage for the rest of their young lives breaks my heart. I dont mean to be downer but it is reality. To all of you in this forum with neuropathy induced by cancer treatments or any other treatments used to help existing medical problems prior...I am sorry for your unpredictable, unfair and unfortunate outcome. We wonder why these things happen and surely it can consume ones soul however, the fact that a forum such as this exists is an incredible dose of medicine that can not cause more symptoms, repercussions and damage. Keep the faith everyone, keep fighting and keep encouraging each other. Feeling thankful today.
Rachel