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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)

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@jeffrapp

Hi Leonard
Your course of illness is very interesting.
I have small fiber PN, present for several years, but much worse for 2 years, since i was also diagnosed with lymphoma. My docs can’t make a connection between the 2, so my PN is of unknown etiology. I have had a positive skin biopsy.
My symptoms are very similar to yours.
Have u had a skin biopsy? What do u think accounts for the improvement in your pain? Did u use any special tricks when you felt the burning?

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Replies to "Hi Leonard Your course of illness is very interesting. I have small fiber PN, present for..."

@jeffrapp
Hi there Jeff,
I’ve had Neuropathy about 42 years. It’s believed to have been caused by long term seizure medication usage.
My theory is that the Neuropathy improved after my lousy eating habits got better. I totally avoided any foods that had any semblance of nutrition associated with them. I use to eat my meals at the bakery. I was a nutrition nightmare. The way I ate I had to have Vitamin deficiencies which has a direct link to Neuropathy.
I’m sorry to hear you had cancer. I can’t imagine how frightening hearing that diagnosis would be. I have read a lot about cancer and anti-cancer treatments as causes of Neuropathy. According to the Lymphoma and
Leukemia Society 10-20
percent of people with cancer develops Neuropathy.
Were you experiencing any type of neuropathic symptoms prior to your Cancer diagnosis?
I have never had a skin biopsy, probably because my nerve conduction study and EMG showed plenty of evidence of nerve damage. Am I correct in assuming Small Fiber Neuropathy doesn’t show up during EMG & Nerve Conduction studies?
I’m clumsy, do you have that problem? I have trouble walking straight too. When I walk down the street I veer out in the street or on a lawn. I don’t know if it’s Neuropathy related or if I’m just naturally uncoordinated. I’m afraid it’s probably the latter. I never used any type of topical products for pain or burning. I used Fentanyl for pain which helped some.
I hope your symptoms improve,
Health & happiness,
Jake