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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Apr 25 10:43pm | Replies (5972)
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@jakedduck1

@johnbishop
My Peripheral Neuropathy has actually improved over the years. Im not sure what type mine is, there are well over 100 types. The burning is much less severe as is the pain. The thing that never improved is numbness and sensory loss. What bothers me most is the feeling my feet and lower legs feel 10 times bigger than they are.
My issues started on the bottom of my feet and eventually progressed just past my waist.
My Electrodiagnostic studies only showed mild to moderate polyneuropathy damage but the Neurologist said Symptomatology is not always consistent with test results so mild results may cause severe symptoms. So hope hangs eternal that things may improve.
Best of luck,
Jake

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Replies to "@johnbishop My Peripheral Neuropathy has actually improved over the years. Im not sure what type mine..."
jeffrapp | @jeffrapp | Sep 4, 2019

Hi Leonard
Your course of illness is very interesting.
I have small fiber PN, present for several years, but much worse for 2 years, since i was also diagnosed with lymphoma. My docs can’t make a connection between the 2, so my PN is of unknown etiology. I have had a positive skin biopsy.
My symptoms are very similar to yours.
Have u had a skin biopsy? What do u think accounts for the improvement in your pain? Did u use any special tricks when you felt the burning?

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