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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
@tigreyes2004, I'm not sure there is a best med to take for the pain since each of us is different and the different medications used may not stop the pain for all of us. I'm not a doctor so really can only speak to my own diagnosis - idiopathic small fiber peripheral neuropathy. My neurologist told me that over time it will get worse but he couldn't say how fast it will get worse. I think it depends on your diagnosis, any treatments you get that may effect the diagnosis, and your diet and lifestyle play a part in the progression (in my humble opinion). I do not have pain with my neuropathy. I only have the numbness but it's still a big concern if it gets worse. I also think that the medications only treat the symptoms and are not a cure. So if the disease does progress it will probably require new/better/more medications to treat the pain.
Hopefully other members will share their thoughts and experience. Are you able to share what medications you are taking for your pain now and if they are helping with the pain?
Replies to "@tigreyes2004, I'm not sure there is a best med to take for the pain since each..."
@johnbishop
Hi John
I actually was diagnosed with Nephropathy about 10 years ago from the nerve test that they do. I was not bad at the time so I didn't take it too seriously. The pain would come & go & it was not a bother. I am so bad now that I had ot go to the Neurologist. I started out with Nortriptilyne & it was helping & I took it for 2 months but then the constipation was so bad that I had to stop. That was the only one that I think helped. The day before I had the bad constipation attack I had been at the ER for abdominal pain bc I am dealing with adhesions due to endometriosis & prior surgery. They gave me a morphine drip & dilaudid & I don't know if in a short time if that could of caused the constipation. Then I went on the Gabapentin for a short time & it was making me to tired so I stopped that. Then they put me on the Cymbalta 30 mg & that did not help so now I am on Cymbalta 60 mg & Gabapentin 200 mg they increased it but I am waiting to see some relief. I'm one day good & one day bad so I have to take one day at a time. Thank you John for all your help.
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@johnbishop
My Peripheral Neuropathy has actually improved over the years. Im not sure what type mine is, there are well over 100 types. The burning is much less severe as is the pain. The thing that never improved is numbness and sensory loss. What bothers me most is the feeling my feet and lower legs feel 10 times bigger than they are.
My issues started on the bottom of my feet and eventually progressed just past my waist.
My Electrodiagnostic studies only showed mild to moderate polyneuropathy damage but the Neurologist said Symptomatology is not always consistent with test results so mild results may cause severe symptoms. So hope hangs eternal that things may improve.
Best of luck,
Jake