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Doses for the Big 3 meds for MAC

MAC & Bronchiectasis | Last Active: Jul 8 10:00am | Replies (47)

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Profile picture for ronneee @ronneee

I take them 7 days a week. Daily doses are Azithromycin 250 mg. Ethambutol 800 mg., Rifampin 450 mg. I weighed 135 when I started 6 weeks ago. Now weigh 105 lbs. Weight is falling off me. Meds made me so sick first couple of weeks and couldn't eat. Forcing myself to eat small things throughout the day but still keep losing. Ugh what to do?

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Replies to "I take them 7 days a week. Daily doses are Azithromycin 250 mg. Ethambutol 800 mg.,..."

@ronneee so sorry you are losing weight. I'm not looking forward to that. I'm just getting started. Adding the Rifampin next week. So did the nausea subside after a few weeks? That's good to know. I hope I can tolerate all of it. I hope you get to a point where you are not losing. It doesn't sound like you need to lose any more. Thanks for your response. Hang in there!

@ronneee please check in with your doctors ASAP regarding the weight loss. That kind of weight loss is unsustainable. Maybe you need a change in drug regimen. There is also a dietitian, Michelle MacDonald, who has a lot of expertise with NTM patients and low weight, I am sure she would have ideas for you. She use to be with NJH but now consults privately.