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I am 75 and have carcinoid tumors NET in lungs
Neuroendocrine Tumors (NETs) | Last Active: Jun 15 2:19pm | Replies (144)Comment receiving replies
@nannybb this is exactly what I’ve been worried about had wedge resection on elk to remove a 1.3 nodule which was typical carcinoid but I tested positive for STAS surgeon said he’s never seen my case before but yet just referred me for a 6 month ct scan which is tomorrow I also had found out I had a small nodule in my left lung as well but I have nothing but this surgeon and I ask how do we. Now the Stas is not in remaining lobe or the other left nodule isn’t cancer he said we don’t we just wait??
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@bijou17 I had a lower lobe wedge which was taken along with 5 lymph nodes. It was benign from the biopsy and still small, but was growing. My problem is having it by robot caused muscle and nerve damage. I have had two nerve blocks to find the nerve bundle that is causing the pain. The last procedure captured about 50%. I assumed they would then do an ablation. That was the end goal so I can return to work. I received a letter yesterday that the request was denied, and I am going to have to pay for the last nerve block out of pocket. I pay about $500 per month for the best United Healthcare has to offer. I've paid into it for 10 years out of pocket. The letter stated Medicare was the one refusing and demanding payment. I'm at my wits end.