← Return to hospital/emergency department visits and sundowners (patient assault)

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Profile picture for dlssell @dlssell

Good morning…I too, had a similar experience with a ED visit. My husband who has moderate to severe Alzheimer’s dementia was experiencing extreme sundowning, starting about 3p going through early am. We could not control his aggression. My son and I took him to our ED the next morning, after several incidents, The staff was less than compassionate, borderline rude, reminding me that the ED does not treat dementia sundowning. Testing was done to preclude UTI, and other possible causes..all were negative. Followed with our PCP who stated he was experiencing dementia-related psychosis and started him on a mild sedative which has treated the outbursts, however, his anger continues which is controllable. The sedative has made him less responsive and more sedate, thus he is more comfortable. A trade-off. It is appalling to me the insensitivity experience at the ED…this is a cruel, devastating disease for both the patient and care partner and surely should be recognized in every medical facility. Mayo Clinic is absolutely the best. Good luck with your LO. I hope you reach a comfort level with a low dose sedative..it truly helped my husband. God bless you and your family.

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Replies to "Good morning…I too, had a similar experience with a ED visit. My husband who has moderate..."

@dlssell I'm sorry you had such an awful experience in the ED, and glad you followed up with his primary provider. I do hope you reported the incident to the Patient Advocate. If it ever happens again, please do so, then the staff can get the proper education.
Since you waited until morning to bring your husband in, I will say we had better luck in an Urgent Care Clinic rather than a crazy, loud ED when my Mom was not feeling well. Is that an option where you live?

@dlssell I'm so sorry for your experience! UTIs are terrible My sister seems to get one about every 6-12 months, and now kidney stones. I hope you spoke with a Patient Advocate and am glad your husband is calmer...I do understand the struggle to choose calm while also striving to keep them alert and involved in life. God bless you and your family also. It's a roller coaster that I hope we caregivers all survive.