@blocker, Good afternoon. I can feel and have great empathy for your journey. I am walking right beside you with idiopathic small fiber neuropathy (SFN). My situation is a bit complicated with chronic myofascial pain syndrome (CMPS). Over time, the zaps and electrical shocks continued to wake me up about 5:30 a.m. just so I could have a day of attempts to control pain and numbness in my extremities.
I can sense that you are distressed about the symptoms and also the impact from the very young onset at age 44. I can also just imagine how concerned you are about stopping the PN process before it continues to manifest itself with more aggravating and limiting symptoms.
First, may I suggest.....take your gabapentin in the evening before bedtime (with your medical provider's approval) to have a more restful and uninterrupted sleep.
Second....Discuss your expected outcomes and results with your medical provider and then give him/ her factual and inclusive results about your experience.
Third.....expand your approach to be more integrative with a focus on mind-body connections. For the body, the best solution I have found has been myofascial massage on a weekly basis. Here is the link to the discussion on Connect :
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
It might be helpful to hear from @jenniferhunter when she has a chance to review your story.
It seems like this is enough for right now. Just know that I understand, and in fact, we at Connect all understand pain, disappointment, and struggle. Today, many of the mentors as well as me, are living a pretty enjoyable life in spite of the existence of a condition for which there is no known cure and only partial containment. Please let us know how your days are going. Chris
Chris, thank you so much for your encouraging words, they mean more than you could know. I am the only person I know who has idiopathic neuropathy, I have 2 friends with diabetic neuropathy but not having someone to talk to who understands what I am dealing with can feel lonely. I have an amazing husband who is incredibly supportive and the most caring, thoughtful teen age boys who do everything they can to help me.
I actually take 600mg Gabapentin 2 times a day and 900mg at bed time. It does help but the night time pain sometimes seems unbearable. When I wake it's a rare occasion that I can get back to sleep; I've developed an intimate relationship with coffee. 😉
I'm open to any suggestions and am grateful to have support and understanding from those who truly understand.