@sherryw My neurologist told me that the rate of progression is unpredictable and varies from one person to another. I was diagnosed with pn 10 or 15 years ago, and after years of intractable pain, I had a Burst DR spinal cord stimulator implant two years ago. It reduced the pain by 75+%, but I think that it's not been doing the job over the past few months. A week ago I turned it off to see what would happen, and so far the pain hasn't gotten any worse. I'm seeing a new neurosurgeon in a few weeks to talk about implanting a new stimulator tied into my dorsal root ganglion. I'm hoping it will be effective.

Jim

@sherryw I know others in the group have been able to taper off all of their pain medications and have a new normal. Like @jimhd said it's unpredictable. I just know that when I started taking the supplements in Sept 2106 that I noticed a dfference after 2 months. The numbness which was just below the knees in each leg was now just above the ankles. It is subjective on my part and each person is different but from my perspective it's seemed to have stopped or slowed down the progression. Others in the group were bedridden and it's allowed them to have more normal life without the pain. The supplements provide the body with what it needs for natural healing of the nerves. I look at it as an alternative to pharmaceuticals used for neuropathic pain that were designed to treat seizures and actually mess with the brain to block the pain signals (my non medical background words/opinion). I still have good and bad days but I feel the supplements really helped me when I had my right knee replaced this April. My recovery went well and I didn't have to take any of the oxycodin tablets they sent home with me for pain. Instead I took Tylenol at night and it did the trick.

If you do decide to join the group, you need to read the welcome new member message that explains everything. You can also search the group for any questions you may have. It's a group focused on helping people help themselves so they won't do the reading for you. Good luck whatever you decide. FYI...the group which is a 501c3 is working on their own product to reduce the number of pills that we have to swallow each day. That is my one downside for me now and I am looking forward to when they release the new product.

@sherryw
Hi there,
My Polyneuropathy started between 30-35 years ago. It started on the bottom of my feet and was bilaterally symmetrical. It progressed up just past my waist but it’s improved in the last 10 years. My feet are mostly numb and feel huge. They still hurt when I walk on them but not as bad and the stinging is gone and the burning virtually all gone. Neurontin or Lyrica never helped. Fentanyl eased my pain better than anything.
Jake