Hi @lorishoe There have been numerous changes in post transplant care to prevent gvhd since you and I had our BMTs. There is another drug added post transplant which can help reduce the development and/or the worst of the symptoms. It became available for that application a couple of years after my transplant. Not every transplant facility has it in their protocol yet but it’s becoming standard in larger teaching/research clinics. Of course there are no guarantees and we do need some gvhd or I guess we can call it graft vs leukemia reaction to make sure it’s doing the job!

I’m glad your experience with gvhd was managed well with steroids and you’ve recovered from all the side effects. Who was your donor? Were you ever able to meet the person or correspond?