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← Return to Mesonephric adenocarcinoma...anyone?
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Mesonephric adenocarcinoma...anyone?
Gynecologic Cancers | Last Active: May 19 10:11am | Replies (30)Comment receiving replies
@mariannie2 i was in it! Seven months until it stopped working which was more effective than anything yet. Very positive experience, the team was great. That diagnosis delay sucks.I would be so annoyed.
Replies to "@mariannie2 i was in it! Seven months until it stopped working which was more effective than..."
@kirlizee
Sorry also wanted to ask about person at Jo’s Trust who is still living after 14 years… is she chatting with you? I’m just wondering about what she had done due to length of time still living. Does she still chat on forums? Also my doctor has said at cancer centre where I am being treated they have seen quite a few women with this and they suspect more women world wide have it but get misdiagnosed with cell type. So I am thinking maybe not as rare as initially thought.
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@kirlizee
So glad to hear it worked for you but wish it had continued to work. Did they tell you why your cancer stopped responding to MSK clinical trial? From what I had read it seemed to be so so promising for us mesonephric people.