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@piemonte Thank you for the info. I am crossing my fingers (and toes) hoping this will work with no side effects.

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@pichulita
I just read my message again and realized I made a mistake about my budesonide protocol!
I was on a 90 day course, 30 days of 9mg/day; then 30 days 6mg/day; maintenance of 3mg/day.

The doctor really wants me to wean myself off. I tried that last year. It didn’t work, So I started the tapering protocol all over again. I’m now down to 3mg/day and it’s working.

The side effect is poor calcium absorption which can lead to loss of bone density. I had a scan 6 months ago which revealed osteopenia. My GI doctor told me to do strength training to help with bone density. He wants me to have a bone density scan annually. I’m signed up with a personal trainer who will work with me once a month to coach me on exercises to do twice a week at the gym.

That’s a lot of info! I hope you have a good trip. I’m going on a Rhinestone River cruise in September. I hope my budesonide is still working.