Connect
← Return to Living with Neuropathy - Welcome to the group
Discussion
Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Hi @helennickola
I have almost the exact same symptoms and diagnosis, idiopathic small fiber neuropathy. Your neurologist is most likely correct about the test not changing anything. In most cases I would agree, but because this is such a maddening condition, I pushed a little to have that test, and some others, so that I coud be sure nothing was missed. The test didn't change anything, other than me being more convinced that the diagnosis is correct.
Regarding meds, I take Lyrica 150 mg 3x daily (actually pregabalin, now that it is generic and much cheaper). I just did an experiment where I went off Lyrica slowly, observed how I felt, then decided to go back on it, because I thought I felt better. It was somewhat subtle, but I do feel better.
Good luck!
Replies to "Hi @helennickola I have almost the exact same symptoms and diagnosis, idiopathic small fiber neuropathy. Your..."
How high can you safely go in daily amount of Lyrica?
Connect
Hi Jeff, So you tapered off the Lyrica and then resumed? Did you ever take Gabapentin?Is your pain such that you thought you could do without the Lyrica? Since my pain is at its worst at night I don’t think I could get through the night without gabapentin but have been wondering if I should try switching to Lyrica. Have you experienced any side effects? Have you tried taking it just at night before bed? My dr. originally prescribed gaba to me 3xday but it really affected my co-ordination and memory. Perhaps that would have gotten better in time but since I play golf and bridge I just tried taking it at night only which works ok for now. (fingers crossed) Good luck to you too!