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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
My neurologist said she could do the skin biopsy but the results wouldn’t change anything. I experience the classical signs of idiopathic SFN the most troublesome being the burning/tingling in my feet and hands, I also have the feeling of “walking on cotton balls” which does not affect my balance luckily, dry mouth and eyes, and sometimes the icy water trickling down my leg. I take 300 mg. gaba at night which most often let’s me sleep through the night. I choose not to take gaba during the day although my hand pain has increased and is noticeable early on. I am afraid to increase the dosage unless necessary. I have noticed that I have alot less patience and tend to feel depressed and easily stressed since being in gaba but don’t see a viable better solution.
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@helennicola, Thanks for your reply. I don't know if it makes a difference to know whether it is SFN and idiopathic. Obviously, you do not have diabetes nor have you been through chemotherapy. Those pre-conditions are treated somewhat differently.
Gabapentin at 300 mg in the evening is the very minimum dosage. Are you struggling with that in terms of sleeping or feeling stressed? You mentioned that you have less patience? Do you now practice yoga, meditation, and mindfulness? I just returned from my annual 3-day retreat where I learned the things I need to do based upon where I am with SFN.
And this time there were new opportunities. For example, I belong to a sangha. Tonight the sangha is coming to my house to take a walking meditation along the Mississippi River and then some mindful meditation and homemade treats around the fire-pit. So, as the hostess, I can feel the stress building. My head is dancing with little zappers. I will do some pre-event meditation. Hopefully, that will calm me down. Just being with these ladies for their love and support is amazingly helpful.
And then, if you are comfortable sharing.....do you use medical cannabis? If so, how has that experience been for you? Do you live in a state with access?
Bye for now, I need to get to work on the fruit for the sangria. Let us know how we can help you. Just make sure you are showing self-compassion and putting yourself first. We cannot care for others until we care for ourselves. We need to feel what that is like.
May you feel safe and protected today. Chris