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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Jan 8 7:56am | Replies (6210)Comment receiving replies
@helennicola, Good afternoon, thanks for responding today. I will cut right to the chase. The tingling in hands and feet may be one thing. The fact that you have burning and possibly pain is another story. May I ask, when do you take the gabapentin? Before bedtime? Throughout the day? What is your current dosage? Do you go for myofascial release therapy (MFR)? There is a discussion here to outline the potential benefit of this treatment.
https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain
The one test that you might explore is the skin biopsy. This is a non-discomfort two-minute test that extracts a small amount of tissue from your leg, for example. The specimen is sent to a special lab that will measure the percentage of living small fiber neuropathy cells in your sample.
I sure would like to think that the medical community is close to a discovery of some way to get our nerves to come alive and be free of symptoms. And someday that might happen. In the meantime, I would like to do what I can to be as pain and irritation-free as possible. Unfortunately, at this point, there is no cure from neuropathy....just some relief and lifestyle adjustments that can help with the quality of life issues. We can be right here to help you discover what is possible. Be healthy and pain-free today. Chris
Replies to "@helennicola, Good afternoon, thanks for responding today. I will cut right to the chase. The tingling..."
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My neurologist said she could do the skin biopsy but the results wouldn’t change anything. I experience the classical signs of idiopathic SFN the most troublesome being the burning/tingling in my feet and hands, I also have the feeling of “walking on cotton balls” which does not affect my balance luckily, dry mouth and eyes, and sometimes the icy water trickling down my leg. I take 300 mg. gaba at night which most often let’s me sleep through the night. I choose not to take gaba during the day although my hand pain has increased and is noticeable early on. I am afraid to increase the dosage unless necessary. I have noticed that I have alot less patience and tend to feel depressed and easily stressed since being in gaba but don’t see a viable better solution.