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PMR: Pain moving around your body

Polymyalgia Rheumatica (PMR) | Last Active: May 18 11:15pm | Replies (53)

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Profile picture for clendenin @clendenin

@kjoed53 SMM?

I’m wondering if you perhaps are referring to smoldering multiple myeloma? My mother had that, and initially my blood work looked as if that was the case for me with the presence of protein m. I went from intravenous steroids, to 60 mg with a gradual agonizing taper with Actemrya shots finally. Blood work has been normal. Some pain though, strange stiffness in my hands, muscle cramps and extreme fatigue sometimes, are the main symptoms now two years out. I’m sort of in remission. But I wonder where this goes next….

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Replies to "@kjoed53 SMM? I’m wondering if you perhaps are referring to smoldering multiple myeloma? My mother had..."

@clendenin
Yes, I have smoldering multiple myeloma in addition to PMR. Prednisone brings down the numbers (M-spike, free Kappa Lt chains and kappa lambda ratio) that are part of the formula to differentiate between low, intermediate and high risk SMM. On prednisone, my numbers fall in the low risk, but I need to get off the prednisone to see the real risk. I'm on 17.5mg now and if all goes well I'll be down to 15mg in 7 days. I need to commit to staying hydrated so I don't get cramps or the BP/HR issues I can get with dehydration.