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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 5 days ago | Replies (5972)Comment receiving replies
This road is so difficult. I have not been in a medical situation like this before and I find myself mentally worn out. With continued grief issues, constant pain and trying to find the source of the intense pain and after 8 plus month being told I have Morton neuroma along with neuropathy, idiopathic as of now, fibromyalgia, venus insufficiency, osteoarthritis, to name a few. So many doctors, so many different diagnosis with some just saying "I don't know" like saying well your getting old deal with aches and pains. Finally and praying this is it for severe foot pain being diagnosed by a podiatrist with Morton neuroma. Why hadn't the five specialists referred me to a podiatrist 8 months ago? I just happened to go to an ER who said why not a podiatrist and gave me a name. As for the neuropathy I was positive for autoimmune and blood work was just done to look into that. The rheumatologist doesn't think so, but is doing what is necessary to rue it out or in. Otherwise another idiopathic which I am not buying. Mentally I am beat. I lost my husband 19 months ago and not long after I started with physical problems. I feel angry at doctors because at the beginning when I told them how I was feeling physically it was dismissed with "Your grieving" All these months of pain and lack of support from doctors and now continued pain with the neuropathy and my foot. I am having a hard time staying positive even if I believe I may have reason to believe that some of the foot pain can be decreased and I will be able to return to activities I once enjoyed. I lost my best friend and the quality of life went too. I am sorry for a negative post today. I know . I was going to say I know it will get better, but darn that is not the way I feel at this moment. Thank you all. I did get a smile out of myself just now thinking Carol you are one negative , mean ole woman today. Actually that is not my usual MO but here it is. Prayers for all.
Replies to "This road is so difficult. I have not been in a medical situation like this before..."
@summertime4 When I read your post, I felt as if it was one I wrote several years ago. However, my dragons are Diabetes and other problems that go along with it. I was diagnosed three years ago with no symptoms. I had a regular blood profile and a week later received a letter from my PCP saying, "You have diabetes." Then she didn't know what to do. So, I was left to my own devices to read and research and doctor myself. I was raging mad and ranted and raved and couldn't believe it. I found Mayo Connect and started asking questions, and the Volunteer Mentors and other members jumped in to help. I stayed mad for a long time until the Connect angels talked me through what I needed to do to help myself. It isn't easy, especially when doctors don't know and you get passed around. If you are lucky, you may get a doctor who can help. It would be wonderful if we could just take a pill and the pain and grief and anger could be cured. Life isn't that easy. I am sorry you lost your husband; that just adds fuel to the fire. My husband and I are still together, but he has heart issues that keep me on guard all the time. My feet are so painful that I sometimes cannot walk without crying. But, I think there is a bottom line. Each day if you can find something to be grateful for or something that made you smile, those little things eventually will become bigger and help you feel better mentally so that you can deal with the physical. If you stay with Connect, you will be able to read and know that you are not alone in your quest to feel better. Eventually, as angry as I was, no one in Connect gave up on me. Today, over three years later, I am still a Diabetic 2; my feet still hurt; and I also deal with kidney issues, panic attacks, and fibromyalgia. That along with my husband's heart problems; his eye stroke, his skin cancer keep health problems in the forefront of our lives. But, I know there are people who have so much more to deal with, and I am thankful. If you will, continue to share on Connect and let us know how you are doing, or if you have questions and no answers, ask on Connect, and someone will try to share an answer. We are not doctors, but we have had similar experiences and can offer what was done that helped us. Will you stay in touch? We all care.
Carol
I travel this road with you.
Had surgery for Mortans neuroma didn’t work and the dr simply said I didn’t follow his instructions!
The journey is isolating at times but you are not alone.
Yesterday a neuro dr mentioned lidocaine infusion?! Never heard of it but will do some research. I am trying a compounding cream of lidocaine ketamine and Baclofen.
Bless you take care
Connect
Some days negativity wins out and that is ok. My sense however is that you are one strong, brave, independent woman that can and will conquer.