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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: 5 days ago | Replies (5972)Comment receiving replies
I would advise getting the skin punch test. It will tell you if your SFN is length dependent on non-length dependent and give you a greater knowledge about the severity of your SFN. I did the test and mine is non-length dependent. Further pushing and more doctors, I ended up at a cardiologist, where I was diagnosed with dysautonomia (a group of conditions affecting the autonomic nervous system). More specifically, a parasympathetic abnormality and am now on a beta blocker. Guess what? 90% of the pain and the pins/needles are gone. While the genesis of my condition was a very traumatic emergency abdominal surgery in which I nearly died in 2012, the resulting disruption to my ability to absorb vitamins and minerals, along with the obliteration of my microbiome, sent my autonomic system out of control, where it stayed. Anyway I hope this helps you be bold in your journey. It's not easy but sometimes there is an answer! I was not willing to take "idiopathic" or numerous other diagnosis as enough information. After literally dozens of doctors and almost 5 years, I found what I needed to do. Good luck!!!
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This road is so difficult. I have not been in a medical situation like this before and I find myself mentally worn out. With continued grief issues, constant pain and trying to find the source of the intense pain and after 8 plus month being told I have Morton neuroma along with neuropathy, idiopathic as of now, fibromyalgia, venus insufficiency, osteoarthritis, to name a few. So many doctors, so many different diagnosis with some just saying "I don't know" like saying well your getting old deal with aches and pains. Finally and praying this is it for severe foot pain being diagnosed by a podiatrist with Morton neuroma. Why hadn't the five specialists referred me to a podiatrist 8 months ago? I just happened to go to an ER who said why not a podiatrist and gave me a name. As for the neuropathy I was positive for autoimmune and blood work was just done to look into that. The rheumatologist doesn't think so, but is doing what is necessary to rue it out or in. Otherwise another idiopathic which I am not buying. Mentally I am beat. I lost my husband 19 months ago and not long after I started with physical problems. I feel angry at doctors because at the beginning when I told them how I was feeling physically it was dismissed with "Your grieving" All these months of pain and lack of support from doctors and now continued pain with the neuropathy and my foot. I am having a hard time staying positive even if I believe I may have reason to believe that some of the foot pain can be decreased and I will be able to return to activities I once enjoyed. I lost my best friend and the quality of life went too. I am sorry for a negative post today. I know . I was going to say I know it will get better, but darn that is not the way I feel at this moment. Thank you all. I did get a smile out of myself just now thinking Carol you are one negative , mean ole woman today. Actually that is not my usual MO but here it is. Prayers for all.