@livinglife1 I’m so sorry that you’re having a tough time. You are coming to the end of steroids and it can be tough. I think I tried to taper at least 3 times. The doctors told me to just taper at my own speed and not do it quickly. That was the right answer for me and I started cutting the pills to make the dosing easier. I certainly don’t suggest that you try cutting your pills but at least have a good conversation with your doctor.
The mental problems you are experiencing are most likely due to prednisone. Try to get an appointment with your doctor as soon as possible! Tell them about the mental problems you are experiencing and that you just need help getting off prednisone and need help for the mental problems you are having. If you need help before
Tuesday morning, go to the ER and explain the problems to them. They should be able to help.
I don’t mean to scare you, but I am. This is not your AI disease causing problems, it’s the medicines meant to help you. Will you stay in touch with me? I really care about you.
P.S. I forgot to ask if someone can stay with you during this rough time. Someone who will listen! Make popcorn, give you a massage! But, if you think you need some help right now, ask your friend to drive you to the hospital ER.