I am a 43 yrs old female. Diagnosed 9 years ago when they called it Reflex Sympathetic Dystrophy Syndrome. They new VERY little about it. So I put it by the way side. Suddenly 2 yrs ago it hit me like a freight train. This pic is what my hands do during just a typical flare up. You are not alone. Feel free to talk to me anytime!!! I need support as well. Mayo clinic in Jacksonville, FL has a CRPS specialist on staff. They can do all the diagnostic testing and any treatment there. But they require a $5000.00 retainer, not including lodging. I live in Atlanta, GA and I'm gonna go out on a limb here and say....my name is Dana. Feel free to private message me. I am truly just trying to figure out where to even start with all this. And I have a 6 yr old son and 12 yr old daughter. But Im someone who understands what you are going through. Day or night. God bless!! Dana