← Return to After "recovering" from PMR, still decreased strength/stamina

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@bandorino I am very sympathetic and have been there w the overwhelming fatigue and a seeming inability to get off prednisone for me. It took two years to get off it and I was so afraid I was gonna have a flare that I really took it easy at the end I went down to 1 mg for probably 2 months then a half a milligram for over a month and then for two weeks I even did .25 mg and finally off. It seems to be holding. Don’t give up on exercising - though you may have to find what will be tolerable. Yin yoga was a life saver. Very passive stretching. Also pilates on a reformer was very good for me. Club Pilates are all over the Country and you can literally go every day - I went maybe 4/5 times a week beginner classes. It was manageable. Don’t give up on moving if you can - even short walks. Giving in to the pain just makes it all worse - that is, if you can get on the right meds that will help you control it. I really never thought I’d be able to get off prednisone. I mean I couldn’t imagine I couldn’t get off it but every time I tried I would get a flare. And then I did! They say my PMR morphed into a rheumatoid thing and maybe it has because I do have some weird joint issues but it’s not PMR anymore and that is a miracle.

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Replies to "@bandorino I am very sympathetic and have been there w the overwhelming fatigue and a seeming..."

@esmeralda53 Thank you so much for the encouragement! It's so easy to get discouraged before even starting something even remotely "exerting." I will have to try Yin Yoga. Congratulations on getting off prednisone! You have given me hope!