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Long-Term Reclast Side Effects
Osteoporosis & Bone Health | Last Active: May 31 8:52am | Replies (37)Comment receiving replies
@broken13 I can’t wholly answer this though I do have 3 autoimmune diseases as well as osteoporosis. I am (and will be for life) on low dose prednisone. Long story as to why but it does work for me. Because of this and other issues my rheumy put me on Tymlos which, for me, is going great. Just had my bone markers done and very good improvement.
Now, the issue at hand. I, too, have heard from other autoimmune patients of difficulty with Reclast. That’s probably going to put me on to Prolia in order to lock in my gains when Tymlos is over. One of my conditions also causes major dry mouth so my periodontist is very much against Reclast.
It may be for people with autoimmune diseases a burst of tapered higher dose steroids may help with Reclast, something to be discussed with rheumatologist if you have one. I would be at my doc demanding something like this. As my GP said for those of us at a certain age with certain conditions, pain itself can make the cycle of inflammation worse. Good luck
Replies to "@broken13 I can’t wholly answer this though I do have 3 autoimmune diseases as well as..."
@ccps101 Thank you for sharing your journey and experience. My sister has been on Prolia for 10 years now, so it seems it does work for others.
@ccps101 Thank you for sharing. Valuable information as we navigate this fight for functioning health!! So far, I'm leaning towards follow up with Raloxifene . It held me for well enough after my first 24 month round of Forteo in 2016 and now just about completing my second round of 24 months of the biosimilar Teriparatide. If necessary, I would be willing to do Forteo again down the road. At least I know that recipe has prevented any further fractures for me and allowed a good quality of life. Tia Chi is a great daily practise that helps my mobility and pain (have now developed arthritis in the spine). So important to keep moving! Cheers!
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@ccps101 My issue is that I simply cannot tolerate steroids. I took prednisone in the past and it spiked my anxiety so high I was in crisis. To me, that's not quality of life. Neither is living in pain, but I'm used to that (shrug). The unmanageable anxiety though is terrifying for me. Would go on prednisone if it wasn't for that. I'll ask about a rheumatologist when I see my primary. Not to mention a better endocrinologist...