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Concerned about Cervical Myelopathy
Spine Health | Last Active: May 19 6:56am | Replies (16)Comment receiving replies
What both of you have said is Greek to me. I don’t know anything about the degree of damage I have other than the MRI showing a compression fracture of my L1 and damage to some other L and T and C 4-5-6 vertebrae and substantial nerve damage and pain.
I have limited neck movement and my lower back and legs are causing pain and weakness in my both legs. I’m scheduled for an appointment with my neurosurgeon to discuss what exactly is it that I have. I am not a doctor and cannot understand what most of the initials mean.
I am practically permanently constipated. Without the Senna at bedtime and MiraLAX in the morning I would not be able to go and when I do go it’s barely there. My GI doctor thinks that I am bound.
Ironically even though I am constipated I have a constant urge to go. Signals from my affected nerves are not reaching my brain. When I’m feeling cold I cannot shiver as the signal to shiver is either twisted or pinched and doesn’t reach the area of my brain that signals me to shiver. I have to wrap myself up with a blanket.
Many of my nerve signals are not reaching my brain. I have a neurogenic bowel and am due for a neurogenic Manometry procedure. I am a total wreck and in pain everywhere and I believe that I also have neuropathy due to all my major muscle groups, arms , legs , torso , back and neck muscle pain.
I feel like I am at the end of my lifespan as I am 72 years old and also many tests that can effect any bleeding has to be approved by my cardiovascular surgeon as I’m on Coumadin ( a blood thinner) and bleed easily. I will take it one day at a time and advocate for myself and not give up.
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@andytheman
That’s so brutal. I only know all of the acronyms at this point because I really only have myself in my own corner. I’ve seen over 15 neurologists and surgeons over the past year, everyone believes I have FND because “the mri doesn’t correlate with the degree of damage” despite me arguing that, I’m not claiming I’m fully paralyzed. I’m not even close. I just have severe weakness in my legs and now my left arm, with shooting electric pains from my neck down. It’s so damn frustrating to be in pain, not know why, while knowing nobody else knows why either.
.37 compression ratio, apparently a poor prognosis in the outcome in cervical myelopathy and decompression surgery.
I have mostly the same symptoms as you, I too am on Sennacote, taking it 3x a day, and I still only manage to go about once a week, if I’m lucky. I used to have IBS issues, I mean, I used to have to use customer bathrooms at work because I’d be crapping my pants if not. But like you, I also have some weird urgency thing going on as well, where I can’t tell if I do or don’t, and then as soon as it hits, it’s immediate. Whether it’s bowels or bladder. It’s truly mind boggling. I pray for you my man. I’m only 28, I hope we both find our answers soon, young or elder.