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Mesonephric adenocarcinoma...anyone?

Gynecologic Cancers | Last Active: May 19 10:11am | Replies (30)

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Profile picture for mariannie2 @mariannie2

@kirlizee
It took 8 months to get a diagnosis as the gynaecologist I had been referred to near my home kept dismissing it. It was only when I asked for my file to be sent to a cancer centre in the city did things speed up. Cancer centre immediately diagnosed after biopsy ( I had 2 previous biopsies, ultrasounds and MRI with other doc showing something but she didn’t act on it) and confirmed mesonephric cervical cancer. They also confirmed my original MRI was misread as it said was contained but when cancer centre radiologists reviewed it they said had spread. So I was classified as stage 2b and hysterectomy not an option any more. I had chemo/rads and brachytherapy x 3. Thank you for reaching back and I will check out the Reddit link. I know there is a clinical trial at Sloan Kettering in NY that is showing promising results for mesonephric cancer. I hope you continue to keep this in check and I agree it is lousy luck to get this one.

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Replies to "@kirlizee It took 8 months to get a diagnosis as the gynaecologist I had been referred..."

@mariannie2 i was in it! Seven months until it stopped working which was more effective than anything yet. Very positive experience, the team was great. That diagnosis delay sucks.I would be so annoyed.