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Concerned about Cervical Myelopathy
Spine Health | Last Active: May 19 6:56am | Replies (16)Comment receiving replies
yeah man, if you are in a chair and cannot get out and have any visible cord deformation described on a magnet study then there's nothing mild about your uncle myelo. And any surgeon or physiatrist that diagnoses off an image while you cannot walk is a quack. everyone is different, some MRIs show the most gnarly osteo topography and cord linked all around the spurs and fellow can be asymptomatic. Or a torg ratio of. 4 by itself without protrusions often brings neurological dysfunction. (which is about a quarter of the fluid buffer space your average canal has. the MRI is a tool and a picture, your clinical presentation is you. Make sure your Dr is treating the right indicator. I'm 44 and got my canal narrowed in several locations at a chiropractor appointment just over two years ago have a ratio of .8 aswell as a physiology non-conducive to intervention of a successful nature. the cord stuff doesn't take long to be permanent, get educated and get opinions if you want a chance to not have to get used to the decline. she is a progressive sort.
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@slarty
The worse part is, I clearly have 50% of my CSF specifically at C5-C6 gone, and it’s compressed into a bean like shape, while my damaged levels above are flattened, it’s still got its CSF around it. At C5-C6 though, it’s completely gone at the bottom towards the anterior. I got told by the surgeon that I’m “barking up the wrong tree” and to see a neurologist, then gives me an anecdote about how someone came in two years ago with symptoms like mine, and he died of ALS two years later.
Goes to say my spine isn’t okay, but it’s probably not all of my issues and that he could operate but there’s no telling it’d fix me or not. I had to explain I already have deficits. My life is already a wreck. I lost my job. Had my car repossessed. The works. And 8 months later I’m no closer to an answer than when my injury occurred. They refuse to see a 28 year old who needs surgery now in 2026, but let’s flashback to even two decades ago, they used to give everyone back surgery, even for minor herniations.
I refuse to believe it’s not some form of SCI as all of my symptoms point to exactly that, and everybody refuses to hear me on it. I had the surgeon refuse to even look at my axial view, just looked at the saggital and said it wasn’t so bad, then shows me another patients mri (with their name and DOB mind you) and goes “see, see how catastrophic it is?” Well gee that’s nice doc, first of all you’re breaking HIPPAA, second of all, I’ve done my research. I know more about the spine than the average person should ever know. There’s plenty of medical documentation detailing minor cord compression with big symptoms. But nobody hears me.
They believe I have FND, but it can’t be the case because I’m not distractable. My “shakiness” when I extend my knees isn’t something that gets distracted away. It happens when I’m sleeping and move, for example.
I don’t know what else to do, but I’m glad I’m not alone. I hope we all find our answers eventually n