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Anyone prescribed antibiotics for pouchitis?
Ostomy & J-Pouch | Last Active: May 26 4:53pm | Replies (22)Comment receiving replies
@janspons boy, does that sound familiar.
When I had my j-pouch removed I was suddenly not sick. Not that I felt great, I had just had surgery, after all. In my case they also did an oophorectomy and hysterectomy, so it was a lot.
My GI never brought up excising the pouch, but for years we had been trying to get the pouchitis under control, and he kept testing to see if it was CD; it was never conclusive. We had nothing else to try. He was supportive when I said I was ready to have an ileostomy.
I am 64, now, and able to be as active (or as lazy) as I want. The only thing waking me up at night is our cat (not too often).
Whatever you decide to do, Connect (and me) is here to support you.
Replies to "@janspons boy, does that sound familiar. When I had my j-pouch removed I was suddenly not..."
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@susanf8 Sorry if TMI, but last night laying in bed I woke up to some cramping and started massaging my belly and on my right side, I felt something that resembled a soft golf ball, maybe a little smaller than that. I rubbed & pushed on it a bit and it seemed to disappear, so I got up to go to the BR, and I sat for 20 minutes bending & rocking in every direction and finally was able to pass more stool than I have in the last 2-3 days combined. I was able to go back to bed with no stomach pain or cramping. My guess is I had a blockage that had lasted 4-5 days? I have been very fortunate as I have had my pouch for 30 years and I don't remember having anything similar to this, my bm's have always been fairly loose. I was to the point I could not push to try to empty as that alone was causing pain. I have eaten very little in the past few days, but today I feel better than I have in about a week or so. Not sure if I maybe was taking too much fiber between taking loperamide, physllium capsules or husk which I have started taking recently, before I was using Metamucil, which I have taken for years and wanted to try something new. I appreciate all the feedback , and the ileostomy is still being considered if the incontinence can't get under control, I don't want to end up scared to go out & about due to the leakage. Hopefully now at least my days can go back to being leak free, and I will continue to deal with the night stuff for now. I do appreciate the support and place to vent or discuss things that others don't understand. Thank you all for your comments. Have a great weekend.