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After "recovering" from PMR, still decreased strength/stamina
Polymyalgia Rheumatica (PMR) | Last Active: 4 days ago | Replies (55)Comment receiving replies
@bizeemom Yes!! This is so hard to deal with. I was recently diagnosed with PMR in early March and on my 2nd of 4 week tapered dosing of prednisone. My doc has me concurrently on hydroxychoroquine. Once the pain and stiffness went away, I've noticed that I've lost my stamina. Even lifting my arms to dry my hair requires a break. Used to park further out in parking lots and walk, now I rely on valet services when they have them. Working in the garden, I dig a little, rest a little, dig a little rest a little. I don't like this at all. So demoralizing when I am used to feeling stronger.
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@bandorino I am very sympathetic and have been there w the overwhelming fatigue and a seeming inability to get off prednisone for me. It took two years to get off it and I was so afraid I was gonna have a flare that I really took it easy at the end I went down to 1 mg for probably 2 months then a half a milligram for over a month and then for two weeks I even did .25 mg and finally off. It seems to be holding. Don’t give up on exercising - though you may have to find what will be tolerable. Yin yoga was a life saver. Very passive stretching. Also pilates on a reformer was very good for me. Club Pilates are all over the Country and you can literally go every day - I went maybe 4/5 times a week beginner classes. It was manageable. Don’t give up on moving if you can - even short walks. Giving in to the pain just makes it all worse - that is, if you can get on the right meds that will help you control it. I really never thought I’d be able to get off prednisone. I mean I couldn’t imagine I couldn’t get off it but every time I tried I would get a flare. And then I did! They say my PMR morphed into a rheumatoid thing and maybe it has because I do have some weird joint issues but it’s not PMR anymore and that is a miracle.