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Newbie here with questions

Neuropathy | Last Active: 2 days ago | Replies (39)

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@heisenberg34 yeah it’s definitely a buzz kill lol and the only reason why I’m getting worried is because the pain died down a lot, which you would think is a good thing now it could be because I was told the pain that I feel is because the nerves are dying and if it gets better, it’s because less nerves are dying, so I’m not sure if it’s that or if it’s because so much nerve damage has been done that’s why I came on here to try to get advice to see if anybody else experiences similar issues, but I did two different EMG tests and I never had any kind of response to it. I looked at my paperwork and there was a flat line. I know how the numbness in my feet have progressed over the years, which is why I feel like in five years they’re gonna be so numb. I’m not gonna be able to walk anymore some little scared. I don’t have any feeling at all in my feet. I could step on a nail and I wouldn’t know. I never really got any real answers from my doctors. I went to a foot Doctor Who handles the calluses on my feet because they get really bad and he said if my A1c is pretty much perfect because it’s a 5.4 it started out at 12.5 that’s how I found out because a new doctor that I started seeing did bloodwork so I fought real hard to get that down pretty quickly and it’s been where it’s at for a few years now, but anyhow, he told me that it wasn’t because of the diabetes and the only other thing I could think of was my back because I got lumbar spine problems with my discs along with some other issues I think when I had my MRI done, they said it was pushing on my spinal cord or something like that and then my family doctor she thinks it’s from diabetes pain management doctor said it’s not my back and he explained why so I never really got any answers to why I have this and I will, I heard if you fix what’s causing it that it could possibly not get any worse so I’m hoping if I start taking B12, that’ll correct it.

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Replies to "@heisenberg34 yeah it’s definitely a buzz kill lol and the only reason why I’m getting worried..."

@chrissywashere

My A1C was 15 or 16 when I found out I was T2 but I was an idiot and ignored the symptoms for awhile which helped land me in this boat. My emgs came back similar to yours but I never really had pain just uncomfortable feelings and electric zaps but now numbness, toes feeling like theyre taped together and lots of muscle wasting. I dont look the same as I did two years ago. Theres other stuff too but Im just repeating myself and I guess they can be found in my comment history.

I know some say dont worry about the future but Im not even 50 and the life I am living now is completely different from what it was two years ago. Its been greatly disrupted so I cant help but worry and Im actually terrified. If I had a bit more security I might have a different opinion on that though. For me the mental aspect of this is just as bad as the physical and Im also struggling with the idea of ending up in a wheelchair as Im noticing decline. Im taking all the suggested supplements Alpha lipoic, magnesium glycinate, b12, omega 3 and some others and trying to exercise with bands to increase strength. I dont know if its doing anything though and doctors dont really do anything. I attempted to get into inpatient neuro rehab but was denied. Despite that Im actually going to attempt some exercise now. The problem is my foot feels like its going to fall off…..good times.

Apologize for the complaining and negative sounding but there is nothing positive about this for me but dont let me rub off on you! Hopefully you get some answers and support here.

For me I guess it helps to vent online even though Im cognisant I may come off annoying. Anyways welcome aboard. Im fairly new here too but chronically online due to this abomination of desolation! Well time for that exercise I mentioned…downloaded some pdfs for foot drop exercises which I think Im developing…..