← Return to My Autoimmune Journey: From 1:5120 to 1:320 ANA

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My Autoimmune Journey: From 1:5120 to 1:320 ANA

Autoimmune Diseases | Last Active: May 16 6:43am | Replies (37)

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@rbear Thanks for sharing. I have a similar journey except started with skin, joints, then, ILD. Been on Mycophenolate Mofetil for ~15 months now. Lungs and skin have stabilized, which is good. I have ongoing muscle weakness in my legs - quads, gluts, et al. Had MRIs, EMG and they don't see inflammation, just some tendinosis and myopathy. Off to PT I go. I'm normally a very active person - tennis, golf, run, gym regularly. This muscle problem has hampered all my physical activities. Anyone experiencing anything similar? Any advice on relief?

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Replies to "@rbear Thanks for sharing. I have a similar journey except started with skin, joints, then, ILD...."

@elisaonthego may I ask your diagnoses? Maybe Myositis of some kind? JO-1 perhaps? I haven’t had the muscle weakness yet. Very lung dominant for me.