@emrose
Wow ... I'm surprised that it costs that much. Health care costs are notoriously hard to pin down what the real costs are. I'm always surprised by how much is billed to insurance compared to the insurance approved amount and what the patient actually pays. The system for health care costs and insurance reimbursements in the USA isn't very transparent.
The following is what is on the internet for a 30 day supply of Rinvoq
Retail (No Insurance) $8,850 – $9,640
GoodRx / SingleCare $6,567 – $6,895
Commercial Insurance $0 – $60 (with Savings Card)
Medicaid $8.00 or less (state dependent)
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Medicare is another beast to figure out with Advantage Plans, Medicare Supplement Plans and Part D drug plans.
I think Rinvoq is FDA approved for GCA only and not yet for PMR. That doesn't mean doctors can't prescribe Rinvoq for PMR but insurance companies might have a reason for not covering Rinvoq if a patient only has PMR. It seems doctors have more choices if patients have both PMR and GCtA . Otherwise doctors can just say "presumptive GCA" if they aren't sure and want to try Rinvoq for their PMR patients.
I'm doing monthly Actemra infusions and it isn't FDA approved for PMR. I have never been diagnosed with GCA . Actemra is only FDA approved for GCA and I'm diagnosed with PMR only. My doctor needed to get authorization to prescribe Actemra to me. Actemra was authorized with the stipulation that I'm treated with GCA protocols "as if I had GCA."
More and more ... I think PMR and GCA are being treated as if they are the same because of how the conditions are "associated." The research being done seems to apply to both PMR and GCA.
@dadcue
my copay for Rinvoq is $85 - I am on a State Employee Health Plan for Retired Teachers. Cost is around 8600.00
Stating to taper from 40 Mg. of Prednisone since my GCA diagnosis. Looking forward to the conitnued taper - I want off the Prednisone. I was down to 7mg a day of Prednisone prior to my GCA episode!
We are all on this journey !