← Return to Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Discussion
Comment receiving replies
Profile picture for bkearbey1 @bkearbey1

I started showing symptoms of PMR in August of 2025 at age 61. I am a male. I had a mild bicycle accident on 08/02/2025. Had minor scraps on my right elbow and arm. Initially I was fine but after a few days I developed right elbow bursitis. Did not see a Doctor and the elbow seemed fine a couple weeks after, However my neck, shoulders, arms, back and left knee started having what I would describe as muscle pain enough that I was sleeping at most 1-2 hours a night and would be up at night in such bad pain I would be sitting in tears trying to digest what was going on. I finally went to see a physician in my primary Doctors office as my doctor was a couple months out for scheduling appointments. Initially did labs this would be around the 10th day of September. Had very high inflammation markers and labs were not good. Again the Doctor did not know what to do and sent me to orthopedic Doctor who determined my bursitis needed an antibiotic shot and a prescription for antibiotics. This served no purpose as the pain was still intolerable. After seeing 4 different physicians I went to a 5th Doctor he was an older Doctor who decided to put me Z pack of prednisone this was in the 3rd week of October which was right after I had went to the ER at the hospital and they gave me 2 shots of antibiotics in the both arms and sent me home. I am all over the place here and I am sorry if you are reading. But the Doctor that prescribed the prednisone was the only relief I got in the first 6-7 weeks I was having symptoms. The frustration level was high but at least I had finally got some relief. I did go for my annual physical on 11/04/25 and my primary Dr sent me to the Arthritis Specialist but I could not get in until 02/03/26. However my primary Dr did get me back on 10mg of prednisone so things were manageable. I went back to primary Doctor on 12/02/2026 and she diagnosed PMR. This was the first time I heard of this. So they lowered the dose to 5mg until I got to see the specialist. The first thing the Arthritis Doctor said is why did your primary Doctor not call we would of got you in immediately. Anyway 20mg for a week 15mg for a week then 7.5, then 5mg and then 2.5mg each for a week. Seemed to be close to normal. Then 6weeks later back on 5mg cause of arm shoulder and neck pain this was for 2 weeks and now I have been off prednisone for 8 days. I am now 62 yrs old and last July I was walk/running 3 miles 4X a week and now running is not an option. However I do appreciate the fact I can walk again and I hope no one has to go through what I experienced. So now I am feeling 90+%. This is just a way of venting, Thanks for listening whoever might find some correlation. Bill

Jump to this post


Replies to "I started showing symptoms of PMR in August of 2025 at age 61. I am a..."

Welcome @bkearbey1, Sorry to hear that you have officially joined the PMR club but happy you found Connect. You are not alone and there are many of us that have been through struggles with PMR and have learned from each others experiences. Thanks for sharing your journey with PMR so far. I've had two occurrences of PMR and thankfully it has now been in remission for the second time for over 6 years.

You might find it helpful to scan through the many other discussions in the Polymyalgia Rheumatica (PMR) Support Group if you have any questions. Here's the link to the discussions in the group - https://connect.mayoclinic.org/group/polymyalgia-rheumatica-pmr/

@bkearbey1 I want to hug you when I read "I am all over the place here and I am sorry if you are reading". I'm not sorry that I'm reading at all. My brain is like a blinking neon sign right now wanting to describe all the ins and outs of my journey with PMR/GCA (maybe yes?)
Right now I don't have the energy to get going but my over riding thought is does mild trauma lay dormant in our systems somehow and then manifest as an autoimmune deficiency?
I'll try to compose something later on, but for now just know that I too had a bike mishap a few years back. I was standing next to my ebike when my hand hit the throttle and the bike took off with me holding on, until I didn't. 75 pounds of ebike landed on top of me (with my osteoporosis). I suffered severe abrasions on my left knee and elbow. I was convinced that I had broken my elbow, but no break on x-ray. I could go on.
I've had neuropathy symptoms that preceded that accident. Another story for another day. (Maybe it's my turn to say "sorry you're listening") I had Covid for the first time December 2024. My main complaint was body aches, fatigue and eventually loss of smell. I did not have respiratory symptoms to speak of except what I would call mild allergy complaints.
When I first thought something was different with my neuropathy symptoms, because it was more like pain than numbness & tingling, I initially thought to check for Covid because of extreme body aches, fatigue and dry cough. Negative. Rather suddenly I started developing lower body pain symptoms of PMR at night and slow but sure that led to morning stiffness that wouldn't subside until late morning. I'll stop there. There's a more recent piece to my story. I'm presently trying to get back on track to a successful taper.
Well, Bill, I guess you got a taker in terms of correlation from this 73 yr old once fairly fit white female. I'm still managing to work my one day a week as a cashier on my feet for 8 hrs which includes lifting and bagging. It's not comfortable. But somehow I think that the social engagement and movement may be integral to my remission. I'm determined.