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Mayo Clinic / John’s-Hopkins - anyone receiving treatment at either?
Neuropathy | Last Active: 21 hours ago | Replies (27)Comment receiving replies
@jedge54 how were you diagnosed with CIDP? Have you been retested recently? Are you progressing or just not improving? I just wonder if you’ve been misdiagnosed since treatment hasn’t worked.
Replies to "@jedge54 how were you diagnosed with CIDP? Have you been retested recently? Are you progressing or..."
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@crosem82
I had the appropriate symptoms. Multiple EMGs, lumbar punch showed excess proteins. Blood tests did not find other causal factors. My Dr, is a contributing speaker for the GBS/CIDP Foundation, so I feel he is making the correct diagnosis.
Thanks for asking.