I’ve been to numerous physical & Occupational therapists, on & off since 2005. As I stated, the physical therapists did help. They can only go so far & then I went further on my own, going to the YMCA. The Occupational therapists were the big disappointment. My dermatologist told me it needs to be a hand specialist, not just a hand therapist. There’s a big difference he told me.
I recently wanted to start both therapies again. I “interviewed” numerous companies that took my insurance. I even started with a company near my home (even though to my surprise & disappointment they didn’t even have an elliptical). I could tell after day 1 of Occupational therapy the man wasn’t going to know how to do anything different than what previous Occupational therapists have done. I also asked several of my doctors if they could help me find a hand specialist & physical therapist who knows how to work with chronic neuromuscular conditions. No one could help.
I believe if I lived near a bigger specialty clinic like Duke or Mayo it would be easier to find appropriate & qualified therapists.

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