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Living with Neuropathy - Welcome to the group
Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)Comment receiving replies
Sorry to hear about your disappointment but it does depend on where you go for therapy. Each therapist has different training, depending on their interests. You have to find a therapist that specializes in what you need. I met a lot of therapists, occupational, physical, and speech. You need to ask questions to find the right one. I went weekly to an outpatient facility to receive physical therapy. I learned the exercises and then did them on my own at home for better balance. I will use home care next time for physical therapy to learn to walk on an uneven surface like the lawn. With Medicare being the primary medical insurance, the physical therapy services will be at no cost.
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I’ve been to numerous physical & Occupational therapists, on & off since 2005. As I stated, the physical therapists did help. They can only go so far & then I went further on my own, going to the YMCA. The Occupational therapists were the big disappointment. My dermatologist told me it needs to be a hand specialist, not just a hand therapist. There’s a big difference he told me.
I recently wanted to start both therapies again. I “interviewed” numerous companies that took my insurance. I even started with a company near my home (even though to my surprise & disappointment they didn’t even have an elliptical). I could tell after day 1 of Occupational therapy the man wasn’t going to know how to do anything different than what previous Occupational therapists have done. I also asked several of my doctors if they could help me find a hand specialist & physical therapist who knows how to work with chronic neuromuscular conditions. No one could help.
I believe if I lived near a bigger specialty clinic like Duke or Mayo it would be easier to find appropriate & qualified therapists.