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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)

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@summertime4

Hi. I have my medical marijuana card. I live in Maryland and I can get the salve for pain and I also use the CBD/THC oil 10:1. I really don't experience much pain relief ingesting. This is probably because I am not consistent. I am trying. I want to tell you is that I have peripheral neuropathy and whether the severe pain on the top of my left foot and toes is from the neuropathy or other issues they are looking into I do know that taking the oil and using the dropper to "oil up "the top of my foot works wonderful. I put it on the painful area and rub it lightly and within 15 minutes I feel relief. I will not say I am pain free throughout my body, but the top of my foot feels much better. I like it better than the ointment because my foot and toes are so sensitive that rubbing the ointment in hurt me. So if anyone has a medical marijuana card you might want to try this. If not you can try the CBD oil you can buy on line or health food store as that may also work. All the dispensaries carry products that are similar in what they do, but are sod by different companies. I don't think California is the only State that sells relief. While on the subject of neuropathy will someone please explain what I can expect. I have the numbness (bad) in both my legs and severe pain and ache I lose my balance easily. I was diagnosed only 3 months ago after failing the nerve conduction test. I knew I had it over a year ago. My husband had it. He was a diabetic. He died from cancer on Jan. 7, 2018 due to cancer. I do not have diabetes. After his death when I went to the doctor and told her how I was feeling and the difficulty I was having walking and pain in my legs I was told it was from my emotion due to grief. When my foot swelled so bad and the pain out of control she started looking into it. We are now at the what is going on. Autoimmune disease is a possibility as ANA blood test was positive, spine possibly compressed by a bone spur (MRI on Monday) veins are bad but was told that is not causing this lymphodema was diagnosed until CAT scan showed no enlarged lymph nodes. Next visit is to a rheumatoid doctor All I know is I hurt and it is very difficult to get around. My fear is being wheel chair bound. I hope some of my input will help someone and someone's input will help me.

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Replies to "Hi. I have my medical marijuana card. I live in Maryland and I can get the..."

Hi @summertime4, I'm not sure any of us members are able to tell you what to expect - most of us not having medical backgrounds or training. It does sound like you are battling multiple issues. I also have lymphedema and swelling - mostly in my right leg and ankle for which I wear compression socks. Hopefully your next visit to a rheumatologist will provide a diagnosis and treatment to help the pain and aches. I have polymyalgia rheumatica (PMR) which is currently in remission but when it's active it plain hurts all over and is very difficult to walk or do any kind of activities. The good news is there are some treatments that will provide relief if that's what is diagnosed on your next visit.

Here are some balance exercises on the Mayo Clinic website that may help you.
-- https://www.mayoclinic.org/healthy-lifestyle/fitness/multimedia/balance-exercises/sls-20076853?s=2

Thank you for sharing your experience here. Can you give us an update after your visit to the rheumatologist?

Hi @summertime4, perhaps a home care agency in your area can help with your lymphedema. I know that some home care therapists are certified on lymphedema. The agency needs an order from your rheumatologist for home care therapy to admit you to their services, The therapist will work with your doctor for orders. They can also help you get fitted for the right sleeve to remove the fluid. You should give it a try and remember it is the patient’s choice with which agency to sign up for services not the doctor. The doctor can assist you but it’s your right to choose. Of course, it all depends on your medical insurance plan but take advantage if you have Medicare as a primary insurance it is at no cost to you for the service.