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Long-Term Reclast Side Effects
Osteoporosis & Bone Health | Last Active: May 31 8:52am | Replies (37)Comment receiving replies
It would be great to hear from people with autoimune diseases and treating osteoporosis . There have been a few comments of negative reactions from Evenity for those folks. I believe someone posted a study link of Evenity blocking Sclerostin and causing low iron. I have leukopenia and chronic low blood count so very reluctant to make that worse.
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@broken13 I can’t wholly answer this though I do have 3 autoimmune diseases as well as osteoporosis. I am (and will be for life) on low dose prednisone. Long story as to why but it does work for me. Because of this and other issues my rheumy put me on Tymlos which, for me, is going great. Just had my bone markers done and very good improvement.
Now, the issue at hand. I, too, have heard from other autoimmune patients of difficulty with Reclast. That’s probably going to put me on to Prolia in order to lock in my gains when Tymlos is over. One of my conditions also causes major dry mouth so my periodontist is very much against Reclast.
It may be for people with autoimmune diseases a burst of tapered higher dose steroids may help with Reclast, something to be discussed with rheumatologist if you have one. I would be at my doc demanding something like this. As my GP said for those of us at a certain age with certain conditions, pain itself can make the cycle of inflammation worse. Good luck