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Has anyone had a succesful bone marrow transplant for myelofibrosis?
Bone Marrow Transplant (BMT) & CAR-T Cell Therapy | Last Active: May 14 1:07pm | Replies (6)Comment receiving replies
@loribmt Thanks so much for the information. Yes, both uncles are in Mexico, and they are finishing up some exams to make sure they are both healthy enough for the transplant. There are a few logisitics that we are still trying to figure out with the insurance and decide between either doing the procedure close by or farther away to obtain better results. If, for some reason he is not cleared to do the transplant, he was given a prognosis of 6months. He is currenly doing blood transfusions every 7 days as his condition has worsened. We were told that its crucial that we start the process sooner rather than later.
Replies to "@loribmt Thanks so much for the information. Yes, both uncles are in Mexico, and they are..."
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@reynaandriana I wish I had more information to give you. But it is crucial for your uncle’s case not to be delayed. The logistics are always the ‘fly in the ointment’ it seems. ☺️
You mentioned “doing the procedure close by or farther away to obtain better results”. Having had a bone marrow transplant myself, my husband and I relocated to Mayo for four months, which is 4 hours from our home.
There are huge advantages having this procedure performed in a larger, more capable facility. Like I mentioned previously, a BMT is a complex procedure and the first 100 days of post transplant care are critical. There can be complications following the transplant because of infection risk, the side effects of the pre-conditioning chemo, and the newly implanted cells themselves causing a reaction. So it’s key to have a depth of knowledge by the staff for how to handle each situation. Patients undergo frequent observation, monitoring and testing to make sure they remain healthy.
Smaller clinics, where not many transplants are performed, often just ‘go by the book’ for post BMT treatments. But each patient’s history is different and one size does not fit all.
So, while it may be more complicated to relocate a bit further to a better facility, it may pay off hugely in the success of the BMT.
I hope your uncle is able to get the transplant soon and that has been made a little easier already by the fact he has a perfect donor! ☺️ Since his brother was tested already for a match, would the doctor that ordered that testing be able to refer your uncle to a suitable transplant site?
Please keep me updated about your uncle.