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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: Oct 27 5:51pm | Replies (6152)
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@suezq

suezq: I have had physical & occupational therapy.
My neuropathy is in my feet, lower legs, hands & lower arms. The Occupational therapists, in particular don’t know how to help. In general the Physical & Occupational therapists are trained more for helping patients with broken bones, injuries, recovery from surgery, etc. They aren’t trained for working with patients with chronic neuromuscular conditions. I’ve asked my doctors if they can help me find therapists who know how to help patients with conditions such as mine. Everyone seems “clueless”.

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Replies to "suezq: I have had physical & occupational therapy. My neuropathy is in my feet, lower legs,..."
John, Volunteer Mentor | @johnbishop | Jul 8, 2019

Hi @suezq, Welcome to Connect. I see that you are a new member and have also posted in the discussion "Anyone been diagnosed with CIDP? It's very rare". You might be interested in the following discussion which I think is the kind of therapy you might be looking for.

> Groups > Neuropathy > Myofascial Release Therapy (MFR) for treating compression and pain
-- https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/

Are you able to share a little more about your diagnosis and the treatments you have tried so far?

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grandmaR | @grandmar | Jul 8, 2019

Hello!
What about those professionals that work in rehab residences. They help people who have had strokes and can't use their feet and legs. Perhaps they can help???
Ronnie

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